For the first time since August when I started this blog I am finding it increasingly difficult to write.  I realize from this exercise that I do actually like writing, but I now feel rather disingenuous perhaps? The story I tell is 100% true.  There are no exaggerations about what took place, the timeline or … Continue reading Final post. Land the plane →

My kids have been amazing troopers from the beginning.  It wouldn't be for a few months before we started to see the impact of their fears, anxiety and worry.  Remember I am writing this in December 2018...four days before Christmas...recounting life in June of this year 2018. We constantly checked in with the kids.  How … Continue reading 33rd post. Mile 23, hitting the wall. →

Because of my seizure 9 days post surgery, I am still unable to drive.  It is only June.  I have to drive to Northgate (6 miles from my house) to get to the SCCA Proton Center.  I would have gone alone each day if I was able.  But I wasn't.  I had to be driven … Continue reading 32nd post. Carpool Karaoke →

The first day of radiation I went with my husband Will.  I knew it would be difficult for him for obvious reasons...and I wanted him to be cared for while I was in the room when he was asked to leave before they began the x-rays and then radiation. We walked into the SCCA Proton … Continue reading 31st Post. Measuring Kindness. →

Six weeks of radiation=30 sessions...5 days a week.  42 days straight of concurrent  chemo with said radiation.  This is what the first stage Standard of Care looks like for malignant gliomas like mine. Again, my treatment is basically mandated, unquestioned, for one reason.  My age.  I am in my 50's.  I don't act like it, … Continue reading 30th post. 1:50 →

May 23, 2018. I am flying to Boston ahead of my family, to attend Katharine’s graduation from Brown University. Katharine is Will’s daughter from his previous marriage. I like to think she is mine as well. I’ve known her for well over half her life. She is a remarkable girl who has been through a … Continue reading 29th post. We Got This →

I had a different title for this post, however I changed it at the very last minute.  I can't do it. I feel badly that I closed the last post with me telling someone I hate them.  However, what would have made it worse is if I had kept the 8 words that I wanted … Continue reading Post 28. Words to live by →

Sunday, May 13, 2018.  Mother's Day. Sally has a soccer game at Garfield at 1pm...We go to the game and then friends take Sally home for the afternoon because Will and I are headed to San Francisco. I am ecstatic.  We don't go away often just the two of us.  I lived in San Francisco … Continue reading 27th post. ##@**! S.F. →

First thing we do after hearing our news and getting home, was to send out our emails.  Communication was critical.  We had family and friends who have been waiting to hear. Who have been praying and taking time from their day to think about me.  THAT is humbling.  I am so grateful, so amazed by … Continue reading 26th post Fog City or Bean Town →

I am home from my quick one night visit to the hospital.  My sister Maureen, whom I affectionately refer to as The Pitbull...a name she earned several years early when our father was battling an equally rare form of cancer (Renal Cell Carcinoma - otherwise known as Kidney cancer).  I remember it like it was … Continue reading 25th Post. The Staples →